I found out last week that I have a rare skin disease. It's called Pityriasis Lichenoides Chronica. I've had it for six months and thought it was excema the whole time. Fortunately, mine is just on my hands. I saw some pretty scary pictures of it on people's butts on the internet. I would explain more about it, except that the whole thing seems confusing and no one knows what causes it. It's not contagious, and as my dermatologist said, "It's related to a disease that's related to another disease . . . be very careful when you look it up!" He was trying to tell me that he doesn't think I'm dying (of AIDS, cancer, Epstein Barr, Hepatitis, etc).
Anyway, the medicine is a lot worse than the disease. It makes me feel sick and requires blood monitoring. I looked that up too. He's giving me a small dose of a chemotherapy drug. It makes me wonder how people manage when they're on chemo. I met a guy once who was on chemo and had this thing he had to wear that delivered the medicine. He refered to it as a Game Boy because it was shaped like one and made beeping noises ever so once in a while.
I'm thinking about going on a Hanson's Disease tour. Maybe travel to Carville this year and Molokai next year. After that, maybe start my Masters in Epidemiology. Disease is in the air. LOL
http://bphc.hrsa.gov/nhdp/Tours_Events_Museum.htm
Anyway, the medicine is a lot worse than the disease. It makes me feel sick and requires blood monitoring. I looked that up too. He's giving me a small dose of a chemotherapy drug. It makes me wonder how people manage when they're on chemo. I met a guy once who was on chemo and had this thing he had to wear that delivered the medicine. He refered to it as a Game Boy because it was shaped like one and made beeping noises ever so once in a while.
I'm thinking about going on a Hanson's Disease tour. Maybe travel to Carville this year and Molokai next year. After that, maybe start my Masters in Epidemiology. Disease is in the air. LOL
http://bphc.hrsa.gov/nhdp/Tours_Events_Museum.htm